Support groups

The Importance of Support Groups

Support Groups Can Help Members to Overcome Health Challenges .Below members of Mitrofanoff support at their 2013 Patient Education Day. Mitrofanoff Support was founded in 2012 and has grown over the last few years holding three Patient Education Days each year in various locations throughout the United Kingdom and  has over 600 members .

Support groups allow those who share a common diagnosis to come together, share ideas, coping tips, experiences and most importantly, to exchange emotional support.

Most support groups start small and are usually set up after personal experience in the condition as more people  join awareness grows  in the condition and so to does the support group.

The primary goal of most groups is to ensure that no one living with the disease or condition that the group serves ever has to feel alone again and suffer in silence.

If you or someone you love suffers from a medical condition. Support groups offer important emotional support and advice on living with they can serve as educators for new patients and the community provide news of important advancements or therapies with Support often fill the void between the medical system and the daily grind of the everyday life of living with or caring for someone with a medical condition


Mitrofanoff Support’s Patient Education Day Septembers 2013 which was held in London



Below is links to support groups who offer

Mitrofanoff Support UK was founded in early 2010 by Kyla Rogers. Mitrofanoff Support raise awareness of what it is like to have a Mitrofanoff and what it means to live with it. We work closely with medical professionals to help them understand what it is like to live with a Mitrofanoff.

Bowel and Bladder Foundation (B&BF) is the UK wide charity for people with bladder and bowel control problems.  B&BF provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.

Mitrofanoff Support (Australia)

“Through our own personal journey our mission now is to establish an organisation for Australia that can positively and pro-actively promote the Mitrofanoff procedure’s medical and health benefits nationally and can provide support to those who have had the procedure.

Janelle Solomon
Chief Executive Officer & Co-founder

The Urostomy Association (UA) was formed to assist people who are about to undergo or who have undergone surgery resulting in a urinary diversion/ileal conduit. The Association was founded at the Christie Hospital in 1971 by a group of people who realised the special needs of persons with a urostomy.

Cancer Research CancerHelp UK is the patient information website of Cancer Research UK.  We believe that information about cancer should be freely available to anyone affected by cancer, and written in a way that people can easily understand


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